Weslee - Epilepsy - June Update

June 26
Weslee is having a bad week. The little seizures started back again. Plus he is hearing all voices like they are computers or synthesized. And today, after pool physical therapy, five minutes before we stepped out of the house to go to the Visitation for a wonderful woman from my past, Weslee took the wrong pills..nighttime (including sleeping pill) instead of his after-lunch pills. I barely got him out of the funeral home before he started stumbling. .. .. And it's only Wednesday.

June 18
Had to search for a new PCP for Weslee.  The one we've been using barely looked at Weslee a few days after we got home, and pronounced him (basically) a baby for complaining about headaches.  Jerk.  So today we met with his new PCP.  So nice, and is helping Weslee's neuro-team to try to get his pain under control.

BTW, he has had a few of what we call "almost seizures" ... simple partials or auras that feel like they will turn into a tonic clonic.  Before the May surgery, he had these AS several times a day but SINCE his May surgery, he's had about 6 of them.  Total.  And no other kind of seizure.

Weslee's neuro-team thinks that the one good thing that came out of the SEEG surgery is that one of those probes must have hit the focal point - where the seizures start, and must have done something to either stop or at least mostly eliminate them.  Here's hoping!

June 14
Met with Weslee's neuro-surgeon today, as kind of a checkup.  Looks like is healing well, at least externally.  He does still have massive headaches, and groin pain.  Not sure I mentioned that before.  The groin/abdomen pain started in the hospital, the day after Weslee's shunt surgery.  CT scans and ultrasounds show that the shunt tubing is exactly where it is supposed to be, and that other than a ton of gas, the cause of the intense pain is unknown.

June 10
Met with the outpatient rehab center.  They had access to the notes from the inpatient center, so as they evaluated Weslee's progress, all were quite pleased.  One problem though.  The OT person notices that Weslee's eyes aren't tracking, and he has double vision.  Weslee says he's had those problems for a while, but since Weslee has a lot of problems understanding time, and his neuro-pathways are messed up, AND since he never mentioned these problems to me, I am taking that with a grain of sale.  Anyway, they are suspending any plans for rehab until after he's been evaluated by a special opthamologist. We will, however, start going to the local YMCA for pool therapy.

June 4
Weslee is finally home, after 35 days and 6 (7? 8?) surgeries. Sound asleep on the pullout loveseat...his new home for at least a couple of days. So many Dr and rehab appointments already. Thinking I will go take a nap as soon as this load of laundry is done.