Book for Epilepsy Awareness

Epilepsy is a neurological disorder caused by unusual nerve cell activity in the brain. Each year, about 150,000 Americans are diagnosed with this central nervous system disorder that causes seizures. Over a lifetime, 1 in 26 U.S. people will be diagnosed with the disease.

 

Epilepsy is the fourth most common neurological disease, after migraines, stroke, and Alzheimer’s.

Source: https://www.healthline.com/health/epilepsy/facts-statistics-infographic#1


So ... why do most people still think it's a fit of insanity, or that it is only convulsions, or that it's no big deal?  Why do people still try to hold the epileptic's tongue so they won't bite it, or think that staring out the window is always day-dreaming or laziness?

Nope. Most people don't have a clue about what seizures and epilepsy really are.  We HAVE to promote awareness on this topic.

Today.

Now.

For this 2019's epilepsy awareness month (November), I'm putting together a book of stories of how seizures and epilepsy affect every-day people.  If you are someone who either has seizures, or you are a caregiver to such a person, please answer the following questions by e-mail to vikkibooks at Yah00 dot com. Subject line: "seizure anecdote".

1. Are you a patient with seizures/epilepsy or a caregiver or teacher/co-worker?

2. Does the patient have a diagnosis? If so, what is it?

3. Does the patient go to school, work, or what?

4. What is the seizure history of the patient? Like when did seizures start, how did they first present/what kind of seizures do they have, and what tests were run.  What medications and other treatments (surgery, CBD oil, ketogenic diet, etc) were tried?

5. How is the patient currently doing? How does having seizures effect the patient's everyday life?

6. Does the patient have any monitoring equipment or alert animal available? If so, what?

7. Please give two tips for patients, caregivers, schools, businesses, or anyone else.  Try to come up with unusual tips so that not everyone gives the same tip.

8. What can we do to help spread the word that seizures are very serious, and can kill?

= = = =

Deadline: September 1 2019

Please include your name and what country you live in.


Contributor's full names and e-mail addresses will be confidential, only noted as FirstName LastInitial, and country.

Fifty per cent of the profits of this book will be donated to worthy epilepsy and SUDEP non-profit groups.

Thank you.