Weslee's seizures had been progressively getting worse since my 2016 diagnosis of breast cancer. It was stress about the possibility of losing me.
Once my son and I moved from Colorado to Kentucky mid 2018, I found him a new epilepsy team. After a stay in a local EMU during Thanksgiving 2018, the team decided to get a neurosurgeon involved. The team reviewed the EEG data, the 3T-MRI and CAT scans. We then discussed the need for more information before even thinking about a VNS or RNS or taking more of his brain out.
He scheduled an SEEG. He said he had performed it many times, with very few problems. I researched the procedure, and found it to be relatively safe.
(Stereoelectroencephalography is an invasive surgical procedure that is used to identify areas of the brain where epileptic seizures originate. During the SEEG, doctors place electrodes in targeted brain areas, which are then monitored to precisely locate the seizure source. Source: https://my.clevelandclinic.org/health/diagnostics/17457-seeg-test)
This picture is my Weslee, shortly after moved from recovery to ICU. He's very drowsy here. Hard to wake up.
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