Thursday, August 22, 2019

Reminder for Epilepsy Awareness Book


The deadline for your epilepsy stories is coming up soon.  Please submit your stories as soon as possible.  Thank you.

Reminder: For this 2019's epilepsy awareness month (November), I'm putting together a book of stories of how seizures and epilepsy affect every-day people.  If you are someone who either has seizures, or you are a caregiver to such a person, please answer the following questions by e-mail to vikkibooks at Yah00 dot com. Subject line: "seizure anecdote" or "seizure stories"

1. Are you a patient with seizures/epilepsy or a caregiver or teacher/co-worker?

2. Does the patient have a diagnosis? If so, what is it?

3. Does the patient go to school, work, or what?

4. What is the seizure history of the patient? Like when did seizures start, how did they first present/what kind of seizures do they have, and what tests were run.  What medications and other treatments (surgery, CBD oil, ketogenic diet, etc) were tried?

5. How is the patient currently doing? How does having seizures effect the patient's everyday life?

6. Does the patient have any monitoring equipment or alert animal available? If so, what?

7. Please give two tips for patients, caregivers, schools, businesses, or anyone else.  Try to come up with unusual tips so that not everyone gives the same tip.

8. What can we do to help spread the word that seizures are very serious, and can kill?

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Deadline: September 1 2019

Please include your name and what country you live in.

Contributor's full names and e-mail addresses will be confidential, only noted as FirstName LastInitial, and country.

Fifty per cent (50 %)of the profits of this book will be donated to worthy epilepsy and SUDEP non-profit groups, including the Chelsea Hutchison Foundation.

Thank you.

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Be sure to check out my ebook "Epilepsy - One Mother's Perspective".

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